Day +98
So this week I had my checkup with my Oncologist (Dr. Freidberg). It seems I need to slow down. He was very surprised I rode 5 miles on my bike and suggested that I should do no more than 1 mile every other day. I told him how many hours I was getting in at work (15-25 / week). He was very shocked at this. He is worried that I am not giving my body enough time to recover. He reminded me that it has only been 3 months since my transplant.
I asked him where he thought I was in the grand scheme of things … as far as recovery goes. He said I was eons ahead of most people, but that I need to slow down a little. I am not sure I can slow down. I am so frustrated as it is that I cannot work a full day.
I had never thought to ask Dr. Freidberg what my “status” was. I just assumed we needed the scans to tell us that. The ONC said that he considered me in remission because I am not exhibiting any symptoms. The news helped alleviate some of our worries, but I think until we get the scans in June we still won’t relax much.
I am in still on Bactrim. I hate taking this stuff. I have to be on it for another 6 months, but if I get pneumonia it could kill me. So … I keep taking it. Thankfully putting the pill in pudding helps to get it down. I am suppose to be on Acyclovir as well, but I just can’t take that stuff. It makes me sick to my stomach to take it. Acyclovir prevents Chicken Pox and Shingles. Which won’t kill me if I get it, but would make my life pretty miserable.
On Wednesday Penfield lost power for a couple hours. As soon as the power went out I woke up instantly. I got dressed and went out to the garage to get the generator started. I had not started the generator in two years so I was not sure if it would start. I should have waited for Carrie to come out and help me move the generator, but I didn’t and moved that 100+ pound generator to the front porch by myself. That was my first mistake. Add to that the fact that it took me about 45 minutes to start that damn thing. I was so frustrated that I did not have the strength to keep pulling the starter. It eventually started, but it only took the basement 15 minutes to take on water. So my office flooded again. 
I was so exhausted from all of the above that Carrie finally had to order me to the couch. So I laid down for about 10 minutes and then basically spent the next 30 minutes in the bathroom throwing up from exhaustion.
Did I mention how frustrating all of this is? When is this going to end?
I just consider myself lucky to have Carrie. No matter how tired or cranky I am she is always there to help me out or cheer me up. 
