Nervous about our meeting yesterday …

So I am a little more nervous about my meeting with the Radiation Oncologist yesterday.

It turns out I have an active spot near my liver. They thought it was nothing before, but it is considerably smaller than it was in September. So because it reacted to the chemotherapy it means it is cancerous. So I will be getting treatment in that spot as well.

I have to get another PET Scan as well. The one I had last Thursday also showed five of my vertebrae in my back light up. frown Now the Radiation ONC is thinking it is more than likely a false positive. He thinks it is just all my bone marrow regenerating everywhere and that part “lit up”. I am trying not to dwell on it, but I am just thinking if I have Cancer in my spine then that cannot be good. disgusted

He also said he thnks I have had Non-Hodgkin’s and Hodgkin’s Disease since the beginning (May 2003). Which is one of the theories my regular ONC had suggested. My first round of chemo got rid of all the Non-Hodgkin’s because that is what it is geared towards. That is why the Hodgkin’s was evident in October 2004. We had not done anything to fight it.

Dr. Constine assures me that I will make it to Texas this year and the next 50 years. So I do like his confidence. smile I know I will make it … just sometimes it is hard not to get the “What If’s”.

Carrie doesn’t deserve this. She does not deserve to be alone.

So other than all the crap going on up above I feel great. My appetite is coming back and I nap later and later in the day. I have even started back to work. Well, I work from home in my basement office, but it is work none the less. It feels good to be productive again.

Today we meet the Radiation Oncologist

So today we meet our Radiation Oncologist: Dr. Louis Constine. I imagine the meeting will go pretty well. I have not seen Dr. Constine since May 2003, but he was very nice and knowledgeable.

I am a little nervous though. I think it is just because it is something new and my imagination is already running away with thoughts and ideas of how things are going to be.

I know I will be radiated in some part of my neck. So one of my fears is that the radiation will cause my throat to swell or get very sore and I won’t be able to eat or drink. I have a hard enough time keeping up on my fluids as it is. The reason being is that most things still taste like crap. smile If my throat gets swollen/sore on top of that … well I am just worried it will put me back in the hospital because I am dehydrated or something.

It’s silly .. but I am more afraid of getting hooked up to an IV now than that Radiation Therapy. I can taste everything that is injected in me now. Whether it was my port (which is gone) or my arm, hand, etc … just thinking about it makes me sick to my stomach.

I am hoping in time that feeling will pass. Needles, IV’s, etc never bothered me before. I guess I am just tired of them. smile

Some more good news! I wake up every morning and my Peleton Project total goes up!

Total Donations: $835.00

  • Josh Emilson
  • Chris Masseth
  • Jeff Dickinson
  • The Ballaron Family
  • Joel Schmid
  • Performance Hobbies
  • The Chalachan Family
  • Mike & Chris Macduff
  • Aunt Marilyn & Uncle Mike
  • Chris Wehner & Joe Decker
  • Corey A. DeLong
  • John Siccardi
  • Tom Ingham
  • Wendy Coppola
  • Chuck Stockdale
  • Larry Mull

I would like to SINCERELY thank the everyone above for donating to my Peleton Project.